It’s been 12 days since I released my written statement about the experiences that my son Andrew and I have had with Dr. Jamie Deckoff-Jones and with the organization Little Acorns. As of this morning, my statement has been downloaded 1,468 times.
Shortly after releasing the statement, I made public a list of the things that our family is requesting. JDJ, LA and their representatives have ignored those requests entirely, consistently making it clear that they think that our family should unilaterally take down my blog and my statement “for the sake of the community.”
This is unfair. The things that we are requesting are wholly reasonable — merely what JDJ and LA should have given us to begin with:
1. A real public accounting of the money of Little Acorns.
2. Some amount of money for Andrew to pursue treatment with Dr. Sarah Myhill in Wales (if she will see him).
3. Public apology for the things that Jamie Deckoff-Jones and Little Acorns have written about me and for the stress that our family has endured as a result of those public statements.
4. Promise not to bring me up in public any more and to leave our family in peace.
5. Agreement to take down from the Internet all information about this case if I do the same.
I thus am asking these parties to give my family the respect that we deserve in considering our requests and in working to fulfill them.
The photo on this blog entry is of me, my daughter Caitriona, and my son Andrew.
There have been some questions in the ME/CFS community about the extent to which my family members and I are making our own decisions regarding this situation. I thus thought that I would release a portion of the audio recording from one of the interviews, to give people a better sense of what my relationship with the individual who interviewed me has been like and to reassure everyone that Trevor (my husband) and I are calling the shots here.
For those who have yet to read it, my statement is here.
http://www.mediafire.com/view/?7jaub8mvd18f0iu
Thanks to all for reading my statement, looking at my blog and extending your support to our family.
Sincerely,
Jacqueline McGorrian McMurdie

great stuff
Date: Tue, 14 Aug 2012 10:23:23 +0000 To: jacqueline925@hotmail.co.uk
Here is the Little Acorns Financial Statement issues on 14 August 2012.
http://www.little-acorns.me.uk/little-acorns-statement-of-income-and-expenditure.html
In reading that “Statement of Income and Expenditure” above, it does not seem to count as a “real public accounting of the money of Little Acorns.” Very disappointing.
18 hours ago · Edited · Like
Jacqueline Mc Murdie After seeking some legal advice we have been informed that this accounting is meaningless and just a rhymns of numbers. We now want the receipts to be produced and under the circumstances we are within our rights to ask for these
9 hours ago · Like · 1
Jacqueline Mc Murdie
Dear Barbara,
My legal adviser informs me that this is not a proper accounting statement.
In addition, a number of the items listed are perplexing to me. Some are for things that I don’t recognize at all and others are for amounts inconsi…See more
Given that this is a one-off “expense”, over a short term, with limited receipts, it is in no way burdensome to reproduce the receipts, in fact, considering the “statement” was produced in response to complaints and questions, the only way to close the books on the situation is to produce verifiable receipts.
4 hours ago · Like · 1
Lisa Petrison My understanding is that Jacqueline sent that note above via email to Barbara Kell, and so hopefully Little Acorns will provide those receipts.
4 hours ago · Like
Jacqueline Mc Murdie well they have got the message as they have sent an email to Linda requesting receipts for changing of our flights. I know our flight changes werent to expensive and I am more concerned over the other expenses and I will be keeping on this until all is disclosed. After all Barbara Kell was very quick to set police on us after the lord mayor on understanding what had happened decided to make sure her donation went straight to the cause for our childs better quality of life. We also want to see the statement from the nationwide which was in Barbara Kells name but in which we put thousands of pounds into which we now have been told is also our right to see these statements
3 hours ago · Like · 1
Lisa Petrison The idea that JDJ paid 1800 pounds in order to get an earlier flight from Hawaii to Santa Fe seems really high, for instance.
2 hours ago · Like
Jacqueline Mc Murdie Pharmacy costs and I would love to know who attended a chiropodist and podiatrist because it definitely wasn’t our child
So for anyone interested, here it the email that Jacqueline sent to Barbara Kell of Little Acorns:
To: Barbara Kell
From: Jacqueline McMurdie
RE: Little Acorns Statement of Income and Expenditures
Date: 15/8/12
My legal adviser informs me that this is not a proper accounting statement.
In addition, a number of the items listed are perplexing to me. Some are for things that I don’t recognize at all and others are for amounts inconsistent with my own records.
Would you please send me copies of all the receipts that you used to compile this?
Thank you.
Sincerely,
Jacqueline McGorrian McMurdie
Here are a couple of media articles that ran during the fundraising campaign prior to the McMurdies’ trip to Hawaii. In them, Barbara Kell of Little Acorns makes it clear that the funds are being raised specifically for Andrew and will not be used for anything other than his treatment.
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http://www.ulstergazette.co.uk/articles/news/26716/fund-set-up-in-andrews-name/
> When the Ulster Gazette first ran the story, Barbara Kell, a woman from South Shileds in England contacted the newspaper and has since set up the fund named ‘Little Acorns’ especially for Andrew in order for him to receive specialist treatment in America.
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http://www.ulstergazette.co.uk/articles/news/27030/andrews-fund-on-the-rise/
>Barbara Kell, an ME sufferer and the woman responsible for the Little Acorns Fund, contacted the Ulster Gazette and expressed her gratitude for the public’s generosity.
>“We have had an amazing week and our total is now very nearly £4000, which I think you will agree is an amazing amount, given the little time we have been going,” she said.
> “None of the funds will be used for anything but helping Andrew. All stationery, stamps, printer ink etc, are being donated by the planning group. ”
22 days later and still no receipts produced by Barbara Kell or any other Little Acorn committee member. I am shocked to say the least these were people we trusted Chris Evans, Sarah Lawry, Carol Carrick, Nicola Kell these are just a few of the people who have been involved in the closed page of Little Acorns and we are so disappointed at all the above people who have not yet been able to give a full account with receipts to the public